Henley Romine

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Henley Romine

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A Henley Story

When 4 year-old Henley Hazel Romine died on July 19, she became a shining symbol of strength, hope and courage.

“She didn’t know she was sick,” said her father, Grant Romine. “She always had smile, a twinkle in her eye and an unbelievable sense of humor.”

“In just four and half years, she touched so many lives and so many people,” said Lynsey Romine, her mother.

When Henley was one year old she was diagnosed with neuroblastoma, a rare form of childhood cancer. Yet in those three years Henley, her parents and 6 year old brother, Cooper, faced the disease with unimaginable fortitude.

During Henley’s three arduous years of treatment, the family was forced to travel, rarely seeing their home in Carmel.

“We traveled her whole life,” Lynsey said. “We were in New York City, in Grand Rapids, where the facilities were for Henley’s treatments. We did not live here for three years.”

Despite the overwhelming demands of the treatments, the Romines ensured that Henley’s life was filled with much joy.

“We would visit beaches,” Grant said. “Henley loved the beach. When we were in New York we visited Central Park. We did everything. Cooper actually remembers the time we spent in Central Park.”

“Henley also got to take her Make-a-Wish trip to Disney World,” Lynsey said. “It was a wonderful time.” The trip was sponsored by the Make a Wish Foundation, an organization that specializes in granting wishes to children who have been diagnosed with life-threatening medical conditions.

Through it all, the Romines have remained steadfast and positive. Both credit a supportive network of family and friends. Part of that network includes Lynsey Romine’s sister, Emily, who has stayed with the family during this difficult time.

“We really needed her,” Lynsey said. “She’s just been incredible. We could not have made it through without her. We’ve had the love and support of so many.”

The Romine family intends to start a foundation that will help families dealing with the pressures of cancer treatment. “The foundation is in its early stages,” Grant said. “We hope that the foundation will be able to raise awareness and assist families with medical bills, such as stays in the ICU.”

“There’s so much that needs to be done during treatment,” Lynsey explained. “You have to keep a safe, clean environment in your home. It can be completely overwhelming. We’d like to help take the burden off of some families. So many people have given us so many ideas.”

Above all, the Romines want Henley’s legacy to reflect the hope that she shared with so many.

“Henley would just draw people in,” Lynsey said. “She was so inspiring, loving, and faithful.”

“She changed our lives for the better,” Grant said. “Most people only dream of angels, we got to hold one on earth.”

Share Henley's Story & Inspire Others

Faith Matters

“With Hope”

This is not at all
How we thought it was supposed to be
We had so many plans for you
We had so many dreams
But now you’ve gone away
And left us with the memories of your smile
And nothing we can say
And nothing we can do
Can take away the pain
The pain of losing you

And we can cry with hope
We can say good-bye is not the end
And we can grieve with hope
“Cause we believe with hope
There’s a place where we’ll see your face again
We’ll see you face again

And never have I known
Anything so hard to understand
And never have I questioned more
The wisdom of God’s plan
But through the cloud of tears
I see the Father smile and say ‘well done’
And I imagine you
Where you wanted most to be
Seeing all your dreams come true
‘Cause now your home
And now your free

And we can cry with hope
We can say good-bye with hope
‘Cause we know our good-bye is not the end
And we can grieve with hope
‘Cause we BEElieve with hope
There’s a place where we’ll see your face again
We’ll see your face again

We have this hope as an anchor
‘Cause we BEElieve that everything
God promised us is true

And we can cry with hope
We can say good-bye with hope
‘Cause we know our good-bye is not the end
And we can grieve with hope
‘Cause we BEElieve with hope
There’s a place where we’ll see your face again
We’ll see your face again

We wait with hope
And we ache with hope
We hold on with hope
We let go with hope

-Author Unknown







Honor Henley

Honor Henley

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Beelieve Foundation

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About this organization

Through Henley’s journey, we learned first hand how important it is to create everlasting memories. However, for families battling cancer, it is difficult to find the time and money to plan these trips. With this program, we hope to alleviate these barriers and provide them with an unforgettable experience!

The mission of The Henley Romine BEElieve Foundation is to give local children in Indy and their families an unforgettable experience by sending them on a day trip somewhere around Indiana. It will BEE called “Buzzing around Indy”.

Our goal is to have the child come up with their perfect Indy getaway. Whether  they want to go to a Colts game, see a concert, go to a Pacer game, go to the Zoo, or go on a shopping spree, we want to be able to provide for whatever their little heart desires.

We will give them a camera to take lots of pictures. After they come back from their day trip we will take the camera and make a photo book of their day out on the town.

We are setting up this foundation in loving honor of our BEEautiful daughter Henley Hazel Romine who was born January 15, 2009 and earned her angel wings in Heaven July 19, 2013. She was diagnosed with a rare form of childhood cancer, Neuroblastoma, at just 18 months old. She fought bravely for 3 years. Henley loved life and all it had to offer. She was full of personality.

Henley loved to travel, discover new places and just explore. As a family we were able to create so many memories and had so many experiences by taking little day trips. We made most of every day we had together.

We hope this experience will create lasting memories for many children and their families. The picture book will be a reminder of their special time together.

We will need your help to make this possible. If you are able to donate museum passes, sporting event tickets, movie tickets, hotel rooms, car services, music venue tickets or anything else that would BEE fun to do around Indy please email us at beebrave15@yahoo.com. If you would like to make a cash donation please visit: http://beelievefoundation.org

Thank you for helping us to honor our BEEautiful daughter Henley Hazel Romine. We do not yet have a tax ID number. That means that any donations as of right now are not tax deductible.

Henley Romine Beeleive Foundation

Did you know…

  • Every day, 43 children are diagnosed with cancer.
  • 12% of children diagnosed with cancer do not survive.
  • Children’s cancer affects all ethnic, gender and socio-economic groups.
  • The average age of children diagnosed is six.
  • More than 40,000 children undergo treatment for cancer each year.

How you can help

The Henley Romine BEElieve Foundation will provide a child battling cancer and their family with an all inclusive day, “Buzzing Around Indy” that will allow them to make everlasting memories and renew their spirit!

Example: Lunch at the Hard Rock café, Bike tour at White River State Park, Pacer Game and Fun Desert at Chocolate Café.

GIVE

Check it out at http://www.beelievefoundation.com

Share Henley's Story & Inspire Others

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Carmel, Indiana
317.818.4595
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